Team Maughan Walks for Hope

Team Maughan is participating in the Huntington's Disease Team Hope Walk on Saturday, September 21st. 

Fighting for a cure for Huntington's Disease is very dear and near to my heart. My Mom's cousin, Kathy, is fighting this devastating disease right now. She was diagnosed with having the Huntington's gene several years ago. At that time, it was a new disease that we had never heard of. Our whole family was devastated. 

My Mom and Kathy are double cousins and since if a parent has the disease then your child has a 50/50 percent chance of having it, we knew it could be in our family too. Kathy's mom and dad and my Mom's mom and dad have all passed away so we had no way of having any testing to know which side it came from. Susan remembered going with her Grandma Maughan up to visit her mom and remembered her just sitting in the dark with jerking movements, which we now assume was part of this disease, and so we decided it probably came through the Maughan side. We later learned that my Mom's cousin, Ronald Maughan, had the disease also. He just recently passed away because of it. So it was confirmed that it came from the Maughan side. 

Mom and my aunt have both been tested and their results came back negative. We don't think Grandma Ila showed the symptoms of the disease. Kathy's daughter, Jenny, took her into her home and provided her a safe and loving place to live for several years until just a few months ago when Kathy started falling and it was decided that she needed to have constant care. She is now living in the BeeHive Home in Logan where she has a beautiful room and they take great care of her.

Kathy is now having the jerking movements, choking, and trouble walking. It was explained to me once that Huntington's is a combination of Alheimer's, Parkinson's Disease and MS. All I know is it is a horrible disease that is eating away at Mom's cousin. She is constantly losing weight because of the choking and not being able to eat and I think she is also afraid to eat because of choking. Every time I see her, she has lost more weight and her clothes are hanging on her, even though Jenny tries to keep her in stylish clothes. 

If you are able, please donate to this important cause, any amount you can give would be appreciated. We need to make people aware of Huntington's disease and find the means to study and find some answers and in the end find a cure. We would also love to have you join our team if you can. Thank you for your help! 

Donate or Join Team Maughan: http://www.firstgiving.com/fundraiser/teammaughan

Please don't hesitate to spread the word and contact me for a flyer you can pass around.

IF YOU OWN OR KNOW OF A BUSINESS OR ORGANIZATION WHO WOULD LIKE THE OPPORTUNITY TO BE A SPONSOR PLEASE LEAVE A COMMENT AND I'LL GET IN TOUCH WITH YOU. 

If you have any questions please don't hesitate to contact me.